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Dr. Sarah Friebert is the Director of the Pediatric Palliative Care Division at Akron Children’s Hospital, the Inaugural Chair Holder for the M.D. Leadership Chair in Pediatric Palliative Care at Akron Children’s Hospital, and Professor in the Department of Pediatrics at Northeast Ohio Medical University. Dr. Friebert developed one of the earliest programs in pediatric palliative care in the United States, and she has held many leadership positions over her career in the fields of pediatric palliative and pediatric hospice care. Also, she has made many important contributions to the literature on palliative care for neonates, infants, children, and adolescents. She serves on numerous boards, committees, and organizations locally and nationally. She has also published and coauthored over 50 journal article and texts and is an international presence on pediatric palliative and hospice care.

Dr. Stefan Friedrichsdorf is a professor of pediatrics and the medical director of the Center of Pediatric Pain Medicine, Palliative Care and Integrative Medicine program at the Benioff Children’s Hospitals, University of California at San Francisco School of Medicine (UCSF). Dr. Friedrichsdorf has received numerous awards for his work including the 2016 Elizabeth Narcessian Award for Outstanding Educational Achievements in the Field of Pain by the American Pain Society and the 2011 Hastings Center Cunniff-Dixon Physician Award. He is the principal investigator of a National Institutes of Health (NIH) / National Cancer Institute (NCI) multisite study on the creation, implementation and evaluation of the Pediatric Palliative Care Curriculum “Education in Palliative and End-of-Life Care (EPEC)-Pediatrics”, which so far trained 990 clinicians from 66 countries.

Dr. Friedrichsdorf enjoys teaching and in 2008 founded and continues to direct the Annual Pediatric Pain Master Class which is a unique week-long intensive course for interdisciplinary health professionals seeking to achieve a deeper more comprehensive understanding of pain. Dr. Friedrichsdorf has also presented over 750 lectures in 30 countries on topics ranging from pediatric pain medicine, palliative care, and integrative medicine. He has authored and coauthored over 60 peer-reviewed articles and 25 books and book chapters. Dr. Friedrichsdorf is also the current president-elect of the Special Interest Group on Pain in Childhood of the International Association for the Study of Pain (IASP).

Dr. Ann Goldman, M.D. became one of first physicians in the world to practice pediatric palliative care. She pioneered a holistic multidisciplinary pain and symptom management model with her development of the Symptom Care Team in the 1980s at the Great Ormond Street Hospital, London, England. During her clinical career, she worked to get pediatric palliative care recognized as a specialty by the College of Pediatrics, was a founder member of the children’s charity Together for Short Lives (formally ACT), mentored many of the current leaders in pediatric pain and palliative care, has edited and authored numerous research articles, texts, and book chapters. She is currently an editor for the Oxford Textbook of Palliative Care for Children.

Professor Richard Hain, MBBS, MD, FRCP (Edin), FRCP, FRCPCH, is a Consultant and all-Wales Clinical Lead of the tertiary Palliative Medicine services for the Children’s Hospital in Cardiff, United Kingdom. Dr. Hain has cultivated a multidisciplinary academic background in medicine, pharmacology, education, ethics, and theology. As a trainee clinician, Hain integrated his long-time passion for pediatric medicine with his interest in closing the service gap for underserved children with life-limiting and complex illnesses to ultimately develop a multidimensional palliative practice model. Dr. Hain trained in and continues to develop his interests through research in end-of-life ethics, epidemiology, service development in pediatric palliative care, opioid pharmacology, pain and therapeutic symptom control, pediatric oncology, and pediatric hematology. He has co-authored over 50 research articles, several books, and many book chapters.

Dr. Ross Hays is the director of the Seattle Children’s Hospital Palliative Care Service, the chair of the Ethics Committee, and a professor in the Department of Pediatrics. Dr. Hays trained at the University of Washington for his M.D., completed residencies in pediatrics, physical medicine and rehabilitation medicine, and a fellowship in birth defects. Dr. Hays has authored over 80 peer reviewed articles and abstracts, over 20 book chapters, has spoken at over 70 conferences domestically and internationally.

Dr. Pamela Hinds PhD, RN, FAAN, is the Executive Director of the Department of Nursing Science, Professional Practice, and Quality, and Professor of Pediatrics at the George Washington University. She is currently serving on the National Academies of Sciences, Engineering and Medicine (NASEM) Roundtable on Quality Care for People with Serious Illness and the NASEM Committee on Childhood Cancers and Disability. Her expansive research career has focused on the pediatric cancer experience and quality of life. Dr. Hinds has authored and edited over 400 journal articles and book chapters and continues to advance the field of pediatric palliative care.

Ms. Susan Huff, RN, MSN, is a leader and administrator in palliative, hospice and home care, with an emphasis on developing healthcare programs for children with complex illness and their families. Her nursing career began in pediatric oncology and pain management; she started the first pediatric Pain Management service at the Women and Children’s Hospital in Buffalo New York in 1989.

During this time, she developed the Essential Care Program; one of the first Pediatric Palliative Care Programs in the United States. She began working on a national level to change hospice care for children and to develop Palliative Care Programs across the United States through program development and government advocacy. Ms. Huff chaired the NYS Palliative Care Coalition and the National Hospice and Palliative Care Advisory Council for Children for several years. Currently, she oversees an organization that provides comprehensive care for children at home and in the community in Maryland and the District of Columbia. This organization provides home health, infusion pharmacy, home medical equipment and respiratory services. In addition, Ms. Huff consults for Johns Hopkins International and is currently working on projects in China.

Ms. Huff credits children and their families as her greatest teachers, driving her interest in the development of programs to assure families have both access and choices in care.

Dr. Elliot Krane is a Professor of Anesthesiology, Perioperative, and Pain Medicine at the Stanford University Medical Center. Dr. Krane attended medical school at the University of Arizona, and subsequently trained in pediatrics, anesthesiology, and pediatric anesthesiology and critical care. After completing his training, he moved to the University of Washington in Seattle, where he started one of the first pediatric pain services in the United States. Dr. Krane has served in many leadership roles, including chairing hospital steering committees, directing hospital-based pain programs, and advising the US FDA and international pain organizations. He holds board certification in Pediatrics, Anesthesiology, Pediatric Anesthesiology, Critical Care Medicine, and Pain Management, and is a Fellow of the American Academy of Pediatrics.

Dr. Krane has received the Physician’s Recognition Award in both Anesthesiology and Pediatric Critical from the American Medical Association, the Poster Award from the Vienna International Congress on Anesthesiology and Perioperative Care, the Jeffrey Lawson Award for Advocacy in Children’s Pain Relief from the American Pain Society, and the Ellis N. Cohen Achievement Award from the Stanford University Department of Anesthesiology, Perioperative and Pain Medicine. He has also been the recipient of grants from the Mayday Fund, the NIH, the American Medical Association, the Washington State Society of Anesthesiologists, the Diabetes Research and Education Foundation, and the American Society of Anesthesiologists as well as many pharmaceutical companies to assist them in new drug development for the treatment of pediatric pain.

Dr. Marcia Levetown received her bachelor’s degree from the University of Virginia, her medical degree from the Medical College of Virginia and her masters of medical management from Carnegie Mellon University. She completed a residency in Pediatrics at Baylor College of Medicine and went on to finish a fellowship in Pediatric Critical Care Medicine at the Children’s National Medical Center of George Washington University.

Dr. Levetown is currently Principal of Healthcare Communication Associates. She was honored with the designation of Fellow of the American Academy of Hospice and Palliative Medicine in 2009. Dr. Levetown has published numerous peer-reviewed articles, contributed to important national policies on ethics issues, palliative care and pediatrics as well as widely used curricula and is the co-editor of 2 books and the author of several palliative care textbook chapters. For 19 years, she was an ethics item writer for the American Board of Pediatrics. She is also active at the national, state and local levels, educating and advocating for improved palliative care. Her hobbies are traveling, photography and physical fitness.

Dr. Stephen Liben is currently a Professor of Pediatrics at McGill University, Director of the Pediatric Palliative Care Program. He received both his BSc in Neurophysiology and his M.D. from McGill University in Montreal, Canada.

Dr. Liben has published over 80 journal articles, published the book MD Aware-A Mindfulness-Based Whole Person Care Course Guide for Physicians, co-edited over 10 book chapters, and co-created core Medical Mindfulness curricula for incoming medical students of the McGill University Faculty of Medicine. His research interests are to reduce the suffering of children and families who are caring children with life-limiting conditions.

Ms. Blyth Lord is the founder and Executive Director of Courageous Parents Network, a not-for-profit focused on improving the experience of parents caring for children with life-limiting illness through education, advocacy and parent-to-parent support. Ms. Lord's daughter, Cameron, and nephew, Hayden, died of Tay-Sachs disease in 2001. In the years since their deaths, Ms. Lord has overseen the Lord Foundation’s funding of pediatric palliative care research and program development. She has also promoted the needs of families caring for children with serious illness and how providers can best meet these needs. Drawing on more than 20 years of experience as a television producer at ABC News, Medical News Network, and WGBH, she produced the award-winning film, Cameron’s Arc with the American Academy of Pediatrics. The purpose of this film was to educate healthcare professionals working with families from the time of their child’s diagnosis through end-of-life care. Cameron’s Arc has been distributed nationally as a teaching tool to pediatric residency programs across the United States. She also produced The Parenting a Child with Life-Limiting Illness video with the National Tay-Sachs and Allied Diseases organization, as a resource for parents and the providers who work with them.

These successes inspired the inclusion of parent and provider story-telling and videos that are central to Courageous Parents Network, which she founded in 2013. A growing number of parents work with Ms. Lord and the staff in contributing to the Network and in continuously evolving its value to families.

Ms. Lord is an affiliate member of the American Academy of Pediatrics Section on Hospice and Palliative Medicine. Ms. Lord is the Board Chair of the patient-disease and advocacy group National Tay-Sachs and Allied Disease and until recently served on the Board of The Children’s Room, the Arlington, MA-based organization that provides bereavement support to families who have lost parents/siblings/children. She has a Master’s in Education and lives in Newton, Massachusetts with her husband and two daughters.

Ms. Joan Marston received Bachelor of Social Science and Nursing from University of KwaZulu-Natal in South Africa. She began her career in children’s palliative care at the height of the HIV/AIDs crisis in South Africa, which largely ignored the profound impacts on children. Ms. Marston founded one of the earliest and now the longest existing children’s hospice in South Africa, known as the Sunflower Children’s Hospice, as a response to the exponential need at the height of the HIV/AIDs pandemic. She later assisted in developing and implementing multiple palliative care services for children throughout South Africa as the Paediatric Palliative Care Manager for the Hospice Palliative Care Association of South Africa. Ms. Marston co-founded and then became the first Chair and then Chief Executive Officer of the International Children's Palliative Care Network and remains an international and global ambassador and advocate for children who needed palliative care services She has aided many low-resource countries with their own child palliative care needs. Ms. Marston’s currently focusing on the Palliative Care in Humanitarian Aid Situations and Emergencies (PalCHASE) organization that she has co-founded which aims to analyze and deliver palliative care needs during catastrophic events. She plans to write a book on her experiences in the child palliative care field.

Dr. Ida Martinson, Ph.D., received her nursing diploma from St. Luke’s Hospital School of Nursing, both her Bachelor’s in Nursing Education and Master’s in Nursing Administration from the University of Minnesota, and her Ph.D. in Physiology from the University of Illinois at Chicago. Dr. Martinson worked as an Instructor in Nursing at St. Luke’s Hospital School of Nursing and at Thornton Junior College, an Assistant Professor and Chair of Research at the University of Minnesota School of Nursing, and Associate Professor, Director of Research, and Professor at the University of California at San Francisco, Chair and Professor of Nursing and Head of Health Sciences at Hong Kong Polytechnic University. She was the co-founder of the Children’s Cancer Foundation of Taiwan, President of Children’s Hospice International, won four American Journal Nursing Book of the Year awards. She has over 100 journal articles, over 50 book chapters, and one film. For the last ten years of her career, she went on to complete missionary and healthcare work in Asia. She enjoys skiing and reading.

Dr. Balfour Mount is a medical graduate of Queen’s University, Kingston, Canada. He trained as a Urologist at McGill University and as a Surgical Oncologist at Memorial Sloan Kettering Cancer Center, New York. He was the Founding Director of the Royal Victoria Hospital Palliative Care Service in 1975, Palliative Care McGill in 1990, and the McGill Programs in Whole Person Care in 1999. He is an Emeritus Professor of Medicine at McGill University where he held the Eric M. Flanders Chair in Palliative Medicine.

Dr. Mount’s research interests include quality of life. He is an author of 148 publications and has participated in the production of 25 teaching films and audio tapes. He has been a lecturer and Visiting Professor in North America, Great Britain, Norway, Holland, France, Austria, Italy, USSR, Japan, Australia, New Zealand, China and Taiwan. He was the founder and Chairperson of McGill’s biennial International Congresses on Care of the Terminally Ill. He is an Officer of the Order of Canada, an Officer of the Order of Quebec and recipient of the American Academy of Hospice and Palliative Medicine ‘Lifetime Achievement Award’. He has been honored through the creation of three named awards: ‘The Balfour M Mount Award’ of the American Journal of Hospice Care, ‘The Royal College of Physicians & Surgeons of Canada Balfour M Mount Visiting Professorship in Palliative Medicine,’ and ‘The Balfour Mount Leadership Award in Hospice Palliative Care’ of the Canadian Hospice Palliative Care Association.

Dr. Stacy Orloff, Ed, D, LCSW, is the current Vice President of Innovation and Community Health at Empath Health. Prior to her current appointment, she served in management and executive roles for Empath Health’s children’s program. She has been employed at Empath Health, as of this interview, for 29 years.

Dr. Orloff has dedicated her life’s work to developing some of the first U.S. children’s hospice and palliative care programming, including bereavement support programming and development of continuum of care planning. Dr. Orloff co-chaired the National Hospice and Palliative Care Organization’s ChiPPS committee for ten years, and sat on numerous executive steering committees. She has also authored and co-authored over 40 peer reviewed publications and books covering topics of ethics, community programs, psychosocial needs, infants, children, and adolescents, bereavement, patient psychosocial health, and interdisciplinary training with practitioners.

Dr. Danai Papadatou, Ph.D., is the Director of Laboratory on Psychopathology & Neuropsychology at the National and Kapodistrain University of Athens, a Professor of Clinical Psychology as well as Professor of Nursing at the National and Kapodistrain University of Athens. Dr. Papadatou received bachelor’s and Master’s degrees in Clinical Psychology from the University of Geneva, Switzerland, a Master’s degree in Family Counseling & Guidance from University of Arizona, and her Ph.D. in Counseling Psychology from the University of Arizona.

Dr. Papadatou has been active in the pediatric palliative field for over three decades and has grown the field through her published books - Life losses- Bridges of Support, In the face of death, Introduction to Psychology for health care provider - 28 textbooks chapters, over 70 journal articles, participation in conferences and symposia, and community capacity-building projects. Her research includes examining health care provider and caregiver attitudes towards death and dying of children, psycho-social stressors of children experiencing natural disaster or crisis, and the examination of pediatric palliative home care practices. Dr. Papadatou is a founding member of the MERIMNA Society for the Care for Children and Families Facing Illness. She has also served in leadership and consulting roles for Association on Bereavement, the Greek Society for Pediatric Palliative Care, and multiple journals including Cancer Nursing, Mortality, Illness, Crisis, and Loss, Journal of Palliative Care, European Journal of Palliative Care, Psychological Issues, and Child and Adolescent: Mental Health and Psychopathology.

Dr. Papadatou was the recipient of the (2017) Aliki Giotopoulou-Maragopoulou Award for the valuable contribution to the support of bereaved children, families, and communities from the League for Women’s Rights, Greece, (2012) Award for outstanding university teaching, research, publication, and professional service in the field of dying, death and bereavement from the Robert Fulton Center for Death Education and Bioethics at the University of Wisconsin, and the (1989) Award for outstanding contribution to the world of hospice support for children from Children’s Hospice International.

Ms. Stacy Remke, LICSW, is Senior Clinical Teaching Lecturer and pediatric palliative care social worker who has aided the development of palliative care best practices for over 40 years. In her career, Ms. Remke has had an international presence in developing pediatric palliative programming models. Additionally, she has contributed to developing educational and academic texts on children’s psychosocial pain experience, children’s medical fragility, palliative home care, interdisciplinary team models, and secondary provider trauma.

Dr. Neil Schechter is the Director of the Chronic Pain Program at Boston Children’s Hospital, an Associate Professor of Anesthesiology at Harvard Medical School, and the founder, President, and CEO of ChildKind, a nonprofit advocating the prevention of all bio-psycho-social pain in children.

Dr. Schechter graduated from Michigan State University, College of Human Medicine Medical School in 1973 and has been active for nearly 50 years in the field of pediatric pain. Dr. Schechter has authored over 120 articles, completed several multimedia appearances, developed several textbooks and book chapters on pediatric pain, and serves as an editor on international and domestic committees such as the World Health Organization Expert Committee on Pediatric Pain and Palliative Care and the Task Force on Chronic Pain in Children of the American Pain Society.

Dr. Schechter’s research focus is now pain of children during common medial practice such as injection pain and functional pain.

Dr. Donald Schumacher, now retired, has served as the President and CEO of the National Hospice and Palliative Care Organization (NHPCO), the National Hospice Foundation, the Global Partners in Care, and the Hospice Action Network. In his four decades of service to children’s palliative and hospice care, Dr. Schumacher advocated for federal policy protections for concurrent care for seriously ill kids, opened numerous hospice and palliative care services that accept and treat kids, and was a global leader in children’s advocacy for hospice and palliative care.

Barbara Sourkes, PhD, a child psychologist, is the first John A. Kriewall and Elizabeth A.Haehl Director of the Pediatric Palliative Care Program at Lucile Packard Children’s Hospital Stanford, and Professor of Pediatrics (and by courtesy, Psychiatry) at Stanford University. In addition to many articles and chapters, Dr. Sourkes has published three books: The Deepening Shade: Psychological Aspects of Life-threatening Illness (1982), Armfuls of Time: The Child’s Psychological Experience of Life-Threatening Illness (1995), and (with Michel Hanus, MD) Les Enfants en Deuil: Portraits du Chagrin [Bereaved Children, Portraits of Grief] (1997). She also co-edited (with Drs. Joanne Wolfe and Pamela Hinds) Textbook of Interdisciplinary Pediatric Palliative Care (2011). Dr Sourkes served as a member of the United States Institute of Medicine Committee on Palliative and End-of-Life Care for Children and their Families. She has won several awards, including the Outstanding Clinical Care award from the American Psychosocial Oncology Society (2011), the Humanities Award from the American Academy of Hospice and Palliative Medicine (2014) and the Compassion in Action Award from Hospice of the Valley (2016).