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Dr. Martinson recalls her career in children dying at home beginning after a backyard conversation with her neighbor and mentor Dr. John Kersey. Dr. Kersey had mentioned that a child with cancer was going to be admitted to the hospital to die. Dr. Martinson questioned the “common practice” of admitting patients who were actively dying to the hospital. After that conversation, she was drafted by Dr. Kersey to assist in the same child’s healthcare. Dr. Martinson then describes her experience with preforming one of the first documented case studies of supporting a child to die at home with their family. She relates her motivation to help the child die with dignity at home to her own profound experience with helping her father in-law pass at home surrounded by family. Dr. Martinson describes her early experiences with clinicians who offered some resistance and skepticism about allowing children to die at home, but she also states that she was supported by most physicians. Dr. Martinson continues by describing how she continued her work to allow other children to die at home and how she grew the practice of dying at home by making herself available for other nurses and health care professionals internationally. Dr. Martinson then mentions the complexities of maintaining and growing her research in the field of dying at home. She concludes with her vision of the field growing to incorporate community medicine and respite care into priorities for healthcare teams for children suffering with chronic diseases.

Dr. Ann Goldman begins the interview by identifying some early field experiences as an oncologist researcher and observing service gaps in clinical patient care that didn’t acknowledge the psychosocial needs of families with chronically ill children. As Dr. Goldman was attempting to find guidance to develop her idea of providing more holistic care, she was met with some unease by peers and a discouraging message from Dame Cicely Saunders to not pursue this notion.

Undaunted and driven by her innate knowledge that this idea was right, Dr. Goldman then describes her experience of being demoted in hospital hierarchy to “invent a job,” where she could establish a pain and symptom management service for pediatric patients with palliative care elements. She describes that she developed her team model from influences in pediatric pain and the adult palliative care field.

Dr. Goldman was met with several challenges to her pain and symptom service. For example, there were no training resources for her multidisciplinary team. She also noted the importance of the relationships she developed that allowed her to expand beyond the oncology department.

Dr. Goldman describes one of her proudest achievements being her role in legislative and public advocacy to help bring about the recognition of pediatric palliative care as a specialty and to develop training materials for providers globally through her charity work Together for Short Lives.

Dr. Goldman concludes the interview with her vision of pediatric palliative care expanding outside of resource rich countries and helping resource poor countries achieve a greater degree of accessibility and to reduce the gap between children who need palliative care and children who don’t receive it.

Ms. Marston introduces her career beginnings as a response to the HIV/AIDS crisis in South Africa and describes some of the memorable experiences with youth she cared for. She explains her role in the initial implementation of pediatric palliative day care and home care as well as some of the challenges around growing provider, political, and community education in South Africa. Ms. Marston then talks about her international experiences meeting other in pioneers in the pediatric palliative care field. She touches on her work in developing hospice programs as well as some of the global challenges she’s experienced while establishing palliative care programs. Ms. Marston then goes on to itemize some of the challenges she’s faced in her career and successful methods to counteract those barriers. She concludes with her vison of child palliative care to be integrated into universal health coverage and “accessible to every child’s needs.”

Dr. Stephen Connor begins by describing some of his early professional experiences and mentors who supported him as he developed his interest in death and dying. Dr. Connor explains that after several “epiphany moments” and observing some of the death and dying practices abroad, he and several other like-minded professionals said: “You know, really, we should just start a hospice.” Dr. Connor then describes his early professional experiences of co-founding some of the earliest hospice programs in the United States, which drove his career from local hospice programming to national programming and finally into the international programming, research, publications, and evidence-based practices for the new fledgling field of children’s palliative care. Dr. Connor shares stories of pivotal moments from his career journey, which spans from the beginning of the pediatric palliative field, through the HIV/AIDS pandemic, all the way to the present. He explores multiple topics such as pain management, policy, program design as they relate to palliative care across the lifespan and from domestic to global socio-economic and techno-political differences. Dr. Connor explains the many ways children’s palliative care has changed since the field developed, as well as some of the barriers and successes he’s seen. Dr. Connor concludes with his goals for the future of pediatric palliative care to be accessible, policy protected, and serving the need for bereavement services.

Dr. Charles Corr begins by explaining how his career in pediatric death, dying, and bereavement began “almost accidently” as he stepped into the instructor role of a death and dying course in the mid-1970s. After that experience, Dr. Corr focused more on teaching classes on children and dying and gathering experiences alongside clinicians in the pediatric palliative field. He explains that as a trained academic writer, he was grateful when pediatric clinicians, patients, and families allowed him to share in their experiences and write them up. Dr. Corr goes on to describe the changes he’s experienced in the field that have removed some of the barriers he experienced in his early career, as well as the strengths of the multidimensional care he has experienced in the field. Dr. Corr ends by identifying patient transitions and seamless care models for patients, especially those that age out of pediatric care, as next frontier for this field.